National Resources
Where do you get information for families when they have a concern about their child's hearing or are in need of resources? Here are essential sources of information that you can provide to meet families' needs - just in time!
Communicate with Your Child
http://communicatewithyourchild.org
- Family-friendly information about what to do when their baby fails the hearing test, what to do if they are worried about their child's hearing
- Print materials available: downloadable brochures and state-specific inserts
- State-specific Contact Information available
- Multiple Languages: Available in English, Spanish, Chinese, Tagalog, Korean and Vietnamese
Hands and Voices National
- A nation-wide parent-driven, parent/professional collaborative group
- Provides unbiased information about communication modes and methods
- Print materials available: Resources for communication, assistive devices, early intervention and special education rights
- State-specific Chapter Information available
- Multiple languages: Some state pages are in Spanish and English
Learn American Sign Language
- SignIt ASL is an online curriculum that is provided at no cost to families with newborns diagnosed with hearing loss within the USA .
- This is made available through their partnership with The National Center for Hearing Assessment and Management (NCHAM).
My Baby's Hearing
- Developed by Boys Town National Research Hospital
- Answers questions about infant hearing screening and follow up testing, steps to take after diagnosis of hearing loss, hearing devices, language & speech and parenting issues
- This site is currently being updated and expanded so you will find a new look and new content in the near future
- Multiple languages: Available in Spanish and English
National Center for Hearing Assessment and Management
- Serves professionals within state Early Hearing Detection and Intervention systems
- Provides important information for families needing to connect with their state EHDI program and other professionals
- Family Support page provides links to family organizations that can help families of children with hearing loss
- Print materials available: "Learning about Hearing Loss: A Roadmap for Famlies"
- State specific information: lists state contacts for EHDI programs and other contacts for families
Centers for Disease Control & Prevention:
A Parent's Guide to Hearing Loss
http://www.cdc.gov/ncbddd/hearingloss/parentsguide/
- Features programs and services about understanding hearing loss & how hearing is tested; finding professionals with expertise in serving babies with hearing loss; fitting a baby with a hearing device, and family support groups
- Information is available in Spanish and English
- Information on genetics
Hearing Loss Association of America:
Financial Assistance Programs & Foundations
http://hearingloss.org/content/financial-assistance-programs-foundations
- Information about how to pursue financing for hearing devices via private insurance, Medicaid, Medicare and charities
- State specific information: state regulations pertaining to laws covering hearing aids is provided
Alexander Graham Bell
Association for the Deaf & Hard of Hearing
http://listeningandspokenlanguage.org/
- Offers information about options and considerations on how to select a communication approach for their child
- Especially useful for famlies using a listening and spoken language approach
- Provides information and resources to help families learn how to provide access to communication as early as possible
American Society for Deaf Children
- Oldest national organization founded by and governed by parents of deaf and hard of hearing children
- Supports and educates families as well as advocates for high quality programs and services
- First Year FREE membership available for families who have deaf or hard of hearing children
- "Deaf Autism America" strives to enhance the quality of life for Deaf and hard of hearing children with autism
EHDI-PALS
Early Hearing Detection & Intervention - Pediatric Audiology Links to Services, a web-based link to information, resources, and services for children with hearing loss. At the heart of EHDI-PALS is a national web-based directory of facilities that offer pediatric audiology services to children who are younger than 5 years of age.
Spanish Language Resources for Families & Children who are Deaf or Hard of Hearing
Hands & Voices (Manos y Voces): Unbiased parent-to-parent support and Spanish-language resources for families and children who are deaf or hard of hearing.
American Speech-Language-Hearing Association (La Asociación del Habla, Lenguaje y Audición): The organization provides Spanish-language information for the public and families with children who are Deaf or hard of hearing.
Alexander Graham Bell (Listening and Spoken Language Knowledge Center in Spanish): Resources for advancing listening and spoken language for individuals who are Deaf or hard of hearing.
National Association of the Deaf
The National Association of the Deaf (NAD) is the nation's premier civil rights organization of, by and for deaf and hard of hearing individuals in the United States of America. Established in 1880, the NAD was shaped by deaf leaders who believed in the right of the American deaf community to use sign language, to congregate on issues important to them, and to have its interests represented at the national level. These beliefs remain true to this day, with American Sign Language as a core value. The advocacy scope of the NAD is broad, covering a lifetime and impacting future generations in the areas of early intervention, education, employment, health care, technology, telecommunications, youth leadership, and more - improving the lives of millions of deaf and hard of hearing Americans. The NAD also carries out its federal advocacy work through coalition efforts with specialized national deaf and hard of hearing organizations, as well as coalitions representing national cross-disability organizations. On the international front, the NAD represents the United States of America to the World Federation of the Deaf (WFD), an international human rights organization. Individual and organizational membership makes it possible for the NAD to ensure that the collective interests of the American deaf and hard of hearing community are seen and represented among our nation's policy makers and opinion leaders at the federal level. The NAD is a 501(c)(3) nonprofit organization supported by the generosity of individual and organizational donors, including corporations and foundations.